A man has given people a glimpse of his day-to-day life living with a rare condition which causes his skin to shed to weekly. Watch below:
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Majibar Rehman Malik, 25, suffers from erythroderma, a severe and potentially life-threatening inflammation of the skin.
The condition is often characterised by red, flaky skin, and is also known as 'red man' syndrome.
It’s believed Majibar’s condition began days after birth and now, he suffers 'shedding' every few days as well as dry skin which cracks during the winter months.
After visiting the doctor in his hometown, Bihar, India, he was advised to go to a bigger hospital for treatment – but due to financial difficulties, his family has been unable to facilitate his medical needs.
Although he loved going to school, Majibar alleged that his education was cut short because other children in his class were ‘scared’ to see him and claimed he was thrown out as a result.
In the above clip, filmed in a 'video diary' style, Majibar takes people through his day-to-day life. He begins by brushing his teeth, before bringing the camera up close to his face which reveals his cracked skin and red eyes.
Shortly after, he proceeds to eat a meal with his hands while inside his family’s home, which appears to be a small hut within a village.
As he takes off his top, he shows his body and spins around to film the full extent of his condition.
His skin appears wrinkly, dry, cracked and sensitive.
As the video ends, he puts drops into his eyes to prevent them from drying out as he is unable to blink, before revealing his family who he lives with – including his parents and two brothers.
Although he’s faced adversity throughout his life due to his condition, Majibar continues to prevail with self-confidence, making his erythroderma part of his identity.
He says he no longer cares about anybody else’s opinions and has been encouraged by his family and friends to live his life to the fullest.
Earlier this year, we reported on a teenager in the US who was accused of cultural appropriation after his skin colour changed.
Aviral Chauhan was born in India and had no idea he had vitiligo until he spotted a white patch on his eye lid, aged 11.
It soon spread to his elbows and knees, and then turned almost all of the skin on his face and body white by the time he was aged 13.
Now, the 19-year-old is unrecognisable from childhood photos, and has even been accused of 'cultural appropriation' when celebrating Hindu holidays with his family.
He said: "It was annoying that people were questioning me and making accusations - it's literally my own culture.
"I don't necessarily go out of my way to tell people I'm Indian, but I would never pretend I'm not, because it's who I am."
Featured Image Credit: Jam Press
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