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Real Life 'Benjamin Button' Boy Looks A Like Pensioner Aged Six

Real Life 'Benjamin Button' Boy Looks A Like Pensioner Aged Six

Yernar Alibekov, from Kazakhstan, was born with a genetic disorder which affects one in 50,000 people

Rebecca Shepherd

Rebecca Shepherd

A six-year-old boy already looks like a wrinkled pensioner, at the age of just six - and it's all down to a rare Benjamin Button type of genetic disease.

Little Yernar Alibekov, from Kazakhstan, was diagnosed with a rare connective tissue disorder known as Ehlers-Danlos syndrome one month after being born.

CEN

The boy's condition was so bad that it left his skin sagging and the first signs came right after he was born with saggy eyelids that left him scratching them all the time.

Just like in The Curious Case of Benjamin Button, Yernar was looking like an old man even as he learned how to walk.

The boy's mum, Zibensa Tulepbergenova, explained that a local hospital in Astana waived their rules and agreed to perform a skin graft operation even though he was under 18.

CEN

Even though the family could have waited some years to get a free surgery, they decided to spend 112,000 KZT (£245/$312) to improve the quality of life for their son.

The money was raised by volunteers and friends, as this amount was too high for Yernar's family alone.

But experts are sceptical that the surgery will significantly help in Yernar's case.

CEN

Doctor Olga Loseva said: "This is a rare disease that happens to one in 50,000.

"The fact that the boy had surgery won't improve his skin condition - if it is saggy it won't change. The only way out is to mitigate consequences of this disease and take great care of him."

Ehlers-Danlos syndrome can lead to such complications as osteoarthritis, scoliosis, chronic pain and joint dislocation.

Back in March, Antonia Payne-Cheney's friends were trying to raise £200,000 ($250,000) for her treatment by launching a photo of her into space.

The 20-year-old has Ehlers-Danlos syndrome which meant that her brain was slowly being crushed by the weight of her skull.

Due to the condition, she has to be resuscitated several times a day and any fall could cause her neck to snap. She is also left in near-constant pain.

SWNS

If left untreated, the ligaments in her neck will weaken and she will no longer be able to support her head.

The surgery she needs isn't funded on the NHS, so Antonia has been raising funds to fly out to Barcelona where she can undergo a life-saving operation on her spine.

Now, two of her pals Dan Jepson and Ben Freke, both 23, have thought up an interesting way to raise awareness - and hopefully more funds - by sending a photo of Antonia into space.

If you want to help out, you can donate here or text, in the UK only, EHLE82 £1, £5 or £10 to 70070.

Featured Image Credit: CEN

Topics: News, Interesting, Condition, Health