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Kid could die every time she goes to sleep or watches Peppa Pig due to rare condition

Home> News

Updated 12:27 6 Apr 2023 GMT+1Published 12:23 6 Apr 2023 GMT+1

Kid could die every time she goes to sleep or watches Peppa Pig due to rare condition

A mum has revealed why her daughter risks death 'every time' she watches Peppa Pig on TV

Poppy Bilderbeck

Poppy Bilderbeck

A mum has revealed why her daughter risks death 'every time' she watches Peppa Pig on TV.

When Sadie Bowyer, from Birmingham, was born, she remained in intensive care for the first six months of her life after being in 'respiratory distress'.

At two months old, Sadie was diagnosed with Congenital Central Hypoventilation Syndrome and underwent a tracheostomy - a hole created in the neck with a tube placed in the windpipe - to help her breathe.

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However, the now-six-year-old's parents, Star and Andrew Bowyer, claim there are some instances where Sadie's breathing doesn't function automatically. But why during Peppa Pig?

Sadie was diagnosed with Congenital Central Hypoventilation Syndrome at two months old.
Kennedy News and Media

The mum says Sadie's 'brain can forget to breathe and send signals for her heart to beat' which means 'every single night' there's a possibility her daughter 'could die within minutes' if she weren't hooked up to a ventilator.

She continues: "If she concentrates really hard, she'll stop breathing. If she's concentrating really hard on Peppa Pig, she'll stop breathing.

"She starts turning blue, she gets tired from carbon monoxide retention and she'll go very still. I immediately put her on the ventilator."

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Sadie requires a ventilator at night to help her breathe.
Kennedy News and Media

Sadie's condition means she 'can't be left unattended' and requires a nurse with her during school hours in case she suddenly 'falls asleep'.

"We have to be careful with long car journeys or watching a film in the evening. We have hospital-grade equipment in her bedroom," Star says. "She's watched 24/7. I haven't slept for six years because I'm listening for alarms at night."

Star and Andrew say it feels like having two children, with the mum explaining: "She's a completely normal child in the day but when she falls asleep, she stops breathing."

Kennedy News and Media

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The Bowyers have since set up a GoFundMe page to raise money for Sadie to have Diaphragmatic Pacers fitted which will help her breathe without a ventilator - the surgery costs £160,000.

Star says: "It could change her life. It wouldn't matter if she fell asleep.

"[...] The pacers would help her be like any other kid. [...] She went to the park and some kids were pointing at her tracheotomy and calling her ugly so she came running over and asked me to take it out but then they were pointing at the hole in her neck and calling her disgusting.

"[...] She's miss independent and she gets upset having a nurse in her bedroom, she wants privacy and to go to playdates.

"It impacts everything."

Featured Image Credit: Kennedy News and Media

Topics: Health, TV and Film, Parenting

Poppy Bilderbeck
Poppy Bilderbeck

Poppy Bilderbeck is a Senior Journalist at LADbible Group. She graduated from The University of Manchester in 2021 with a First in English Literature and Drama, where alongside her studies she was Editor-in-Chief of The Tab Manchester. Poppy is most comfortable when chatting about all things mental health, is proving a drama degree is far from useless by watching and reviewing as many TV shows and films as possible and is such a crisp fanatic the office has been forced to release them in batches.

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