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Little girl born with 'werewolf syndrome' dubbed child from heaven by king and queen

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Updated 09:31 15 Sep 2023 GMT+1Published 09:30 15 Sep 2023 GMT+1

Little girl born with 'werewolf syndrome' dubbed child from heaven by king and queen

The two-year-old girl was born with congenital generalised hypertrichosis.

Anish Vij

Anish Vij

A two-year-old girl with 'werewolf syndrome' has been dubbed a 'child from heaven' by Malaysia's royalty.

Adik Missclyen, from Bintulu, has a rare condition that causes excessive hair growth all around her face and body.

Although 'werewolf syndrome' - officially known as congenital generalised hypertrichosis (CGH) - is not a serious condition clinically, 'the cosmetic burden on a child could be immense', the National Library of Medicine says.

This little girl, who was also born without nostrils, waited in line to meet Malaysia's monarchs as the Sultan and his queen payed a visit to Bintulu, while touring the island of Borneo on 11 September.

The girl's parents, Roland Jimbai, 47, and Theresa Guntin, 28, were among the locals who waited to see Sultan Yang di-Pertuan Agong Al-Sultan Abdullah Ri'ayatuddin Al-Mustafa Billah and his consort Raja Permaisuri Agong Tunku Azizah Aminah Maimunah Iskandariah.

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As the royal couple met Adik, they referred to the girl as 'anak syurga', which translates to 'a child from heaven'.

"It was worth the wait when Sultan Abdullah, Tunku Azizah and their children met up with our family and took pictures with Missclyen," her father said.

A two-year-old girl with 'werewolf syndrome' has been dubbed a 'child from heaven' by Malaysia's royals.
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"I am incredibly happy that we had the chance to meet the King and Queen. I am still at a loss for words.

"The King told me to take care of Missclyenas she is God's blessing."

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He added: "I hope to meet the royal couple again if possible."

The parent also claims that some horrible people in the past have referred to Adik as an 'animal child'.

He said: "Initially, we were really hurt and felt stressed.

"We felt upset and began avoiding bringing her to public places, except for hospital follow-ups.

"We were so afraid of what people were going to say."

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The incredibly rare condition affects just a handful around the world, with fewer than 50 people thought to have it.

Lalit Patidar, from the village of Nandleta in Madhya Pradesh, India, is another young person who has CGH.

Lalit Patidar from India was also born with hair all over his body.
@lalitpatidar520/Instagram

"I saw him half an hour after the birth and his whole body was covered in hair," Lalit's mum, Parvatibai recalled.

His dad, Bankatlal, said: "The nurse was startled when she saw him. She called the doctor in and asked him what was wrong.

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"The doctor said not to worry, he's fine. The doctor didn't do anything, he just shaved his hair and that's all."

He added: "It doesn't grow longer or get shorter; we tell everyone it's a birth defect."

Lalit said that despite all the bullying and name-calling he has suffered in the past, he's always tried to remain positive.

And while there may never be a cure, he's learned to embrace his uniqueness.

Featured Image Credit: Newsflash

Topics: World News, Health, Mental Health

Anish Vij
Anish Vij

Anish is a Journalist at LADbible Group and is a GG2 Young Journalist of the Year 2025. He has a Master's degree in Multimedia Journalism and a Bachelor's degree in International Business Management. Apart from that, his life revolves around the ‘Four F’s’ - family, friends, football and food. Email: [email protected]

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@Anish_Vij

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